Well, sometimes you just feel you've opened up a can of worms. Or dug deeper into a pit.
So it goes with E's hearing.
Our ENT appointment today didn't go as favorable as I hoped. In fact, it went south in a beep...and I'm talking on the audiology report. Who would have thought that one downward diagonal line would shatter your heart and bring you to instant tears.
The great news is that E's right ear has not changed. She still has the permanent hearing loss at the same frequencies.
The bad news is that E's left ear (that was normal and compensating for the right ear) now shows the exact same hearing loss as the right.
So with that punch thrown, E got her first experience with a needle (that she knows of) while getting blood taken for genetic testing (looking for a hearing mutation gene since there is a family history of deafness). E still has a strong countenance about her so this process brought tears to both our eyes and had me kneeling before an elevator on the 27th floor praying with her (the only way to get through it). She'll be going through a CT Scan and more in depth audiology testing to find out the cause and if it may be the start of a progressive hearing loss.
Tears well up as I write that last phrase but I trust that God knows what he's doing, even with "stress induced psoriasis". E is his and he loves her more than we ever could, though that is hard to wrap around my little mind. I know there are so many bigger issues we can be dealing with and thankful we are not.
Due to the type and severity of the hearing loss (and not fully knowing all the factors), hearing aids and surgery do not seem to be an option. Time will tell. We continue on with the FM device at school but I am wondering what we can do to help the other 4 days of the week. Though, I have to admit, surgery and hearing aids really sound appealing right about now.
Not the future we hoped for our child. Broken hearted, we submit this to the Lord, knowing he fully created her, and as I was reminded, knows exactly what experiences will shape her character and who her parents are. Praying that I trust the Lord as much as I think I do.
So it goes with E's hearing.
Our ENT appointment today didn't go as favorable as I hoped. In fact, it went south in a beep...and I'm talking on the audiology report. Who would have thought that one downward diagonal line would shatter your heart and bring you to instant tears.
The great news is that E's right ear has not changed. She still has the permanent hearing loss at the same frequencies.
The bad news is that E's left ear (that was normal and compensating for the right ear) now shows the exact same hearing loss as the right.
So with that punch thrown, E got her first experience with a needle (that she knows of) while getting blood taken for genetic testing (looking for a hearing mutation gene since there is a family history of deafness). E still has a strong countenance about her so this process brought tears to both our eyes and had me kneeling before an elevator on the 27th floor praying with her (the only way to get through it). She'll be going through a CT Scan and more in depth audiology testing to find out the cause and if it may be the start of a progressive hearing loss.
Tears well up as I write that last phrase but I trust that God knows what he's doing, even with "stress induced psoriasis". E is his and he loves her more than we ever could, though that is hard to wrap around my little mind. I know there are so many bigger issues we can be dealing with and thankful we are not.
Due to the type and severity of the hearing loss (and not fully knowing all the factors), hearing aids and surgery do not seem to be an option. Time will tell. We continue on with the FM device at school but I am wondering what we can do to help the other 4 days of the week. Though, I have to admit, surgery and hearing aids really sound appealing right about now.
Not the future we hoped for our child. Broken hearted, we submit this to the Lord, knowing he fully created her, and as I was reminded, knows exactly what experiences will shape her character and who her parents are. Praying that I trust the Lord as much as I think I do.
